Is a complex and rare, genetic medical condition that affects both males and females throughout their lives. People with PWS may need extra support with health and development and in the areas of education and work.
People with PWS may present some challenging learning and emotional behaviours and unusual medical issues. The syndrome typically causes:
- A constant desire to eat food, which seems driven by a permanent feeling of hunger and can lead to life –threatening obesity
- Restricted growth, leading to short stature
- Reduced muscle tone (hypotonia)
- Learning difficulties
- Lack of sexual development
- Behavioural problems, such as temper tantrums or stubbornness
Although PWS presents a group of features that occur together, it is important to remember that every child is an individual. Not every person with PWS will have all of these characteristics. Presentations will also vary in intensity from person to person. Increasingly, early diagnosis gives our children a more positive start with prompt intervention and sensible eating plans.
Having a child with special needs can be challenging and families may need extra support if their child has PWS. Many adults with PWS will benefit from access to a supervised occupation in a caring and understanding environment. Adults may need life-long continuous support and care in order to achieve a semi-independent lifestyle.
For more information see: